Anna Juul. Photo by Fryd Frydendal
Insiders of the Psychiatric System: "We need bedside manners and a big boost of empathy"
24. May 2023Our psychiatric system is in decline, but the demand for help has never been greater – especially among the younger generation. It’s the perfect storm. But if we prioritize empathy, cross-institutional collaboration, and open the joint dialogue about the problematic aspects of life, we could face a brighter future, say Anna Juul and Sara Kærn Linstow in this interview
This spring, we launched our mission, ‘A Future where Young People Thrive,’ to design a future for a thriving youth. This interview is the second in a series of conversations where we’ll explore key themes, new ideas, and new perspectives on mental health and well-being among young people. Read the first one here.
Sara Linstow. Photo by Claus Boesen
In Denmark, we see an increasing number of young people and children experiencing a decline in well-being in school and a steady increase in mental dissatisfaction. A 2020 study shows that 15 percent of all Danish children aged 18 have been diagnosed with a psychiatric disorder. Among 16 to 24-year-olds, one in three women and one in five men report unhappiness, stress, anxiety, and loneliness – severe conditions that put pressure on the welfare system. But the psychiatric system struggles to keep up with rising demand due to a lack of staff, beds, and resources and years of political under-prioritization.
Striving for a future where young people thrive requires attention to and understanding the psychiatric system as part of the exploration towards something better.
What is the common denominator between the crisis of well-being and the decline of the psychiatric system? How can we rethink the current approach, and what actions are needed? We spoke with two psychiatry insiders: Anna Juul, author, screenwriter, and a longtime psychiatric patient, and Sara Kærn Linstow, a physician in the child and adolescent psychiatric emergency department.
A multi-diagnosed psychiatric system
Anna Juul and Sara Kærn Linstow share their deep understanding of psychiatry and willingness to highlight the urgent need for immediate and long-term change in the field. Sara expressed her candid views in a controversial column titled ‘I’m the sleepy doctor who abandons my patients’ and shared her insights in the Danish news podcast Genstart. Anna has written several books about her experience with psychiatric illness, including her most recent work, ‘Superskurk,’ and actively participates in political debates. Anna is also a Danish Psychiatry Foundation board member, but she speaks on her behalf in this interview.
Sara, you receive these young people with severe mental health issues such as anxiety, depression, and suicide threats. You have doubts about the psychiatric system’s ability to meet these patients’ critical and often life-altering needs. What is your experience of a typical day in the psychiatric ward?
“I experience a psychiatric system with many diagnoses, which is ironic. But what I experience most is that there is often too little time and resources to help young people who need psychiatric help effectively. That leads to a tendency to rush treatment and do things halfway,” Sara explains.
She continues: “To do my job, I have to do it 100 percent, which means, among other things, that I have a lot more time to screen and treat my patients and walk them to the door when they are ready.”
"What I experience most is that there is often too little time and resources to help young people who need psychiatric help effectively. That leads to a tendency to rush treatment and do things halfway"
Sara Kærn Linstow
She also refers to the politically established “30-day rule,” which mandates that patients must receive an appointment within 30 days of being referred to a psychiatrist. While the rule may be well-intentioned, Sara believes it needs to be revised given the current state of resources in the psychiatric field.
“The 30-day rule is good, but it’s impossible to comply with in practice. It’s a calculation that does not correspond to the current needs and the scarce resources available to the psychiatric system.”
Anna, you have been in contact with the psychiatric system and doctors like Sara since you were 16. Thus, you see and experience the system as a patient. What kind of system are you dealing with?
“There is a lot to say, but I’m encountering a system that places enormous emphasis on documentation, often at the expense of patient care. I’m a firsthand witness to a system that only takes patients seriously once something goes wrong or is just about to go wrong. A system that doesn’t have enough empathy, bedside manners, and a bad acknowledgment that mental illness has many faces – not just one.”
Anna also points out that our current system is too busy treating symptoms with medication and not doing anything preventive: “We are dealing with a system that focuses on treating symptoms with medications rather than prevention and looking at overall patterns, even though everyone knows that working with various forms of therapy, like talk therapy, is one of the things that works particularly well for people with mental disorders.”
"We are dealing with a system that focuses on treating symptoms with medications rather than prevention and looking at overall patterns, even though everyone knows that working with various forms of therapy, like talk therapy, is one of the things that works particularly well for people with mental disorders"
Anna Juul
Accepting the difficult paths in life
Finding a link between the heavily burdened psychiatry and the increasing dissatisfaction among young people can be a delicate balancing act. Nevertheless, the fact remains that more and more young people are reporting unhappiness and seeking psychiatric help at an alarming rate. That begs the question: What underlying factors contribute to both issues and how can we address them effectively?
“Of course, it’s important to distinguish between mental illness and dissatisfaction, but I see a clear pattern in society. We’re too obsessed with performing and making a positive contribution,” says Anna Juul, explaining that she sees a clear link between the increasing mental dissatisfaction among young people and the general and collective feeling of not being allowed to feel and show the negative and challenging emotions and aspects of life. It’s ingrained in society, politics, our institutions, often in friendships, that we should always feel happy and satisfied. Expressing one’s true feelings and thoughts is still not widely accepted, and this reluctance is detrimental to both the field of psychiatry and our collective, especially younger generations’ sense of well-being.”
"It's ingrained in society, politics, our institutions, often in friendships, that we should always feel happy and satisfied. Expressing one's true feelings and thoughts is still not widely accepted, and this reluctance is detrimental to both the field of psychiatry and our collective, especially younger generations' sense of well-being"
Anna Juul
As someone who has dealt with various difficult and complex emotions, especially those related to your illness, how would you prefer that we approach each other as a society and as individuals?
“I think it would help me a lot if I felt that it was legitimate for people to ask me how things are going, and I could say: Things are going terribly. It’s okay if you can not relate to that. But it would be an important shift if we tried to find the value in difficult feelings. Because it’s also these feelings and aspects that develop you as a person,” Anna says.
Sara Linstow agrees and, like Anna, sees that we need to improve as a society and as individuals at accepting difficult things, not to mention talking about them. At the same time, she notes that there needs to be more contextual and interdisciplinary collaboration between institutions in Denmark, such as the public school where most children and young people have their daily lives. Teachers have an exceptional insight into the everyday life of young people. That is an insight that psychiatry does not have, and neither do the municipalities.
“As a psychiatrist, I want to learn more about what the community and schools are doing. Increased collaboration is crucial to intervene in young people’s lives before the damage is done. We need to put ourselves in their daily experiences and prevent problems from occurring in the first place.”
Sara emphasizes the importance of cross-functional collaboration, explaining that it would give her, as a doctor, a better understanding of where to intervene rather than just relying on a diagnosis after a few conversations with a patient. More diagnoses are not necessarily the way forward.
“A diagnosis can benefit people with schizophrenia, bipolar disorder, or autism. However, overdiagnosis is not the solution to the crisis of well-being. If we do, many young people will be labeled with anxiety and depression without the actual diagnosis, when in fact, they are suffering from something else because of how we have structured society for children and young people,” Sara explains.
"As a psychiatrist, I want to learn more about what the community and schools are doing. Increased collaboration is crucial to intervene in young people's lives before the damage is done. We need to put ourselves in their daily experiences and prevent problems from occurring in the first place"
Sara Linstow
Empathy is the essence
The decision-makers at Christiansborg promise ten-year plans, systemic interventions, and actions to achieve much-needed positive change in the psychiatric system. However, it needs to be clarified how effective future interventions will be given our current societal norms and views. How can we create the best method for those who need help?
“We cannot solve the problem without the politicians. We need them to listen and provide sufficient funding to improve the psychiatric system. If they could raise the money during the Covid 19 crisis, they can certainly do it now if they prioritize it enough. Privatizing everything is not the answer because that would only exacerbate social inequality,” says Anna Juul.
“Nurses and many physicians should strive to improve their patient interaction skills, including the cultivation of ‘bedside manners’ and attentiveness to patient needs. It’s not to say that these skills don’t already exist; they do. But there is a pressing need to focus more on developing and maintaining these key human skills. Perhaps medical education institutions should consider introducing empathy as a subject to address this aspect even more,” Anna suggests.
Sara emphasizes the importance of empathy and humanism in psychiatry and stresses the need for new creative approaches to design a more compassionate and accommodating psychiatric system.
“Introducing empathy and ‘learning bedside manners’ in medical school is an excellent idea,” Sara says. “As a student, I would have appreciated it. However, we need to recognize that our current working conditions are a major contributor to this problem, and we need a new framework to support the practices,” Anna highlights.
In our ‘Imagine if we…’- workshops, we spent a lot of time debating how to shift the overall responsibility for well-being from the individual to the community, from treating symptoms to more preventive initiatives. Anna, how can we redesign the system to reduce the number of young people feeling lonely, depressed, and anxious?
“I truly empathize with the unhappiness of young people today. With wars, the massive climate crisis, and just coming out of a pandemic, there is no shortage of bad news. However, we must talk openly about these difficult topics and find a safe space for them. I often wonder why we don’t use existing places in the society like churches to facilitate these critical conversations for young people without any religious context.”
“We should also introduce a new subject in public school that covers all aspects of being human, including difficult topics such as loss and anxiety. By creating an environment that supports and accommodates these challenges, we may prevent more young people from needing psychiatric help from doctors like Sara.”
"I truly empathize with the unhappiness of young people today. With wars, the massive climate crisis, and just coming out of a pandemic, there is no shortage of bad news. However, we must talk openly about these difficult topics and find a safe space for them"
Anna Juul
Thriving Together – A new mission to design a future for a thriving youth
How can we create a future where young people can thrive while the reported stress, anxiety, and loneliness levels are higher than ever?
At DDC – Danish Design Center, we’re mobilizing a range of actors to explore how to create a foundation for an entirely different future. This is not just another plan or reform: With over 150 actors from the children’s and young people’s area, we have created the future universe Vorby – an initial suggestion of what a future that strengthens the well-being of young people looks like. Now the principles behind this future scenario are ready to be further explored and translated into a mission that can spark concrete action and commitment across here and now.
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